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Dementia Society of America – Common Definitions

Where does one get the truth about Alzheimer’s Disease and other forms of Dementia? Right here. The Dementia Society of America has collected definitions they believe will be helpful to you. They also offer a variety of presentations and programs to help people living with these conditions and their families and caregivers. You don’t have to make this journey alone.

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Renee Harmon about Early-Onset Alzheimer’s

When her husband, a physician, was diagnosed with Alzheimer’s disease at the age of fifty, Renée Brown Harmon’s life threatened to capsize in the waves. She stayed afloat by learning to lean on friends and family and by relying on her devotion to her husband and her two young daughters. Renée, also a physician chronicles the eight years of her husband’s illness in her book, Surfing the Waves of Alzheimer’s: Principles of Caregiving That Kept Me Upright. Drawing on principles she garnered along the way, she uses the structure of a memoir to tell her and her husband’s story. Each chapter ends with a discussion of one of the principles Renée learned, and offers practices that readers may use to develop their own plan to bring greater balance to their roles as caregivers.

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The Perfect Thing: When a Parent is Diagnosed with Alzheimer’s

This course guides adult children of people living with Alzheimer’s through the early, moderate, and late stages of the disease. Course modules average three minutes in length. That makes them perfect for busy professionals to consume 24×7, whenever it’s most convenient. The course is taught by Barbara Ivey, whose mother had early onset Alzheimer’s and whose father cared for her mom. Barbara helps you prepare for the impact of Alzheimer’s on the person living with the disease, the person in the home caring for them, and the adult child(ren) – especially those who live far away.

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The Lost Kitchen by Miriam Green: Reflections and Recipes from an Alzheimer’s Caregiver

The Lost Kitchen is an honest look at the hidden gifts of living with a parent with Alzheimer’s. Miriam Green weaves poetry, recipes and anecdotes into a nourishing whole as she details her family’s struggle to maintain balance—and laughter—in the face of her mom’s diagnosis and deterioration.  Miriam and her mom Naomi remind us how to love and laugh in a world that is often confusing and painful.

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Living with Alzheimer’s: Richard Creighton

This site consists of a journal Richard started on January 21, 2011. That was the date on which his wife, Kate, was diagnosed with Alzheimer’s disease. It is an account of their lives since that time and includes the symptoms Kate has displayed as well as how they had to adapt. You will also learn about their frustrations and problems.

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Adaptive Wear Clothing

For adults experiencing cognitive, motor, and/or mobility changes, the process of getting dressed and undressed can be stressful, painful, and stigmatizing. That is why at Joe & Bella, we’re dedicated to creating beautiful clothes that are easy and quick to put on and take off. We do not compromise on quality or style. Much the opposite: we’re driven to innovate, informed by research and testing. We’ve brought on the designers of some of the world’s most successful consumer and technical apparel brands to create each of our items.

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Share Your Resource

Do you have a resource that you feel could benefit someone living with a younger-onset dementia diagnosis? Or perhaps a resource that may help someone simply understand what younger-onset dementia is? We aim to collect your resources and share them with the Lorenzo’s House audience! 

Thank you for helping us grow our library of community resources!

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