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Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers

Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer’s disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer’s, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor.

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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease and Other Dementias

The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer’s, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is widely considered to be the most detailed and trusted book available.

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A Guide End of Life Decisions

When a person with late-stage Alzheimer’s— a degenerative brain disease — nearsthe end of life and is no longer able to makehis or her own decisions, families must makechoices on the person’s behalf. The Alzheimer’s Association® can help youprepare for making end-of-life decisions.

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Dementia-Care Education Specialist Shares Informative Videos

Ultimately, my goal is to help people build their skill sets. I believe, if we are going to make a difference, we must be willing to change, rather than try to get the person living with dementia to change back into the person they were before the condition started. The condition is changing them, so we change or we are not helpful. The question for me is: What are you going to do about it? If you are interested, take a look, and then try some of the tips I have provided. You can be the big difference in the quality of someone’s life. I believe it’s not about where the journey ends, it’s about who you are with and how you get there.

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Illinois Cognitive Resources Network

There are different types of dementia, which can have different symptoms. It is important to talk with your doctor to be evaluated. Learn about the facts and myths of dementia here. Also, find dementia services and support groups local to Illinois.

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Area Agencies on Aging

An Area Agency on Aging (AAA) is a public or private non-profit agency, designated by the state to address the needs and concerns of all older persons at the regional and local levels. On this site you can find your local AAA agencies.

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Share Your Resource

Do you have a resource that you feel could benefit someone living with a younger-onset dementia diagnosis? Or perhaps a resource that may help someone simply understand what younger-onset dementia is? We aim to collect your resources and share them with the Lorenzo’s House audience! 

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