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Parent’s Guide: Helping Children & Teens Understand Alzheimer’s Disease
Young people might have questionsabout what’s happening as the diseaseprogresses. It’s important to answerthese questions openly and honestly, andshare with them the changes the diseasemight bring.
It’s OK That You’re Not OK: Meeting Grief and Loss in a Culture That Doesn’t Understand
When a painful loss or life-shattering event upends your world, here is the first thing to know: there is nothing wrong with grief. “Grief is simply love in its most wild and painful form,” says Megan Devine. “It is a natural and sane response to loss.”
Life in Motion Guide End-of-Life Planning Workbook: A Guide to Organizing Life’s Vital Information
Life in Motion is a guided workbook to help you get your affairs in order and ensure others can find important information and documents when you are gone (or when you need help.) It has all the forms, checklists, and inventory sheets you need to quickly organize your personal information.
Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers
Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer’s disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer’s, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor.
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease and Other Dementias
The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer’s, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is widely considered to be the most detailed and trusted book available.
A Guide End of Life Decisions
When a person with late-stage Alzheimer’s— a degenerative brain disease — nearsthe end of life and is no longer able to makehis or her own decisions, families must makechoices on the person’s behalf. The Alzheimer’s Association® can help youprepare for making end-of-life decisions.
Dementia-Care Education Specialist Shares Informative Videos
Ultimately, my goal is to help people build their skill sets. I believe, if we are going to make a difference, we must be willing to change, rather than try to get the person living with dementia to change back into the person they were before the condition started. The condition is changing them, so we change or we are not helpful. The question for me is: What are you going to do about it? If you are interested, take a look, and then try some of the tips I have provided. You can be the big difference in the quality of someone’s life. I believe it’s not about where the journey ends, it’s about who you are with and how you get there.
Illinois Cognitive Resources Network
There are different types of dementia, which can have different symptoms. It is important to talk with your doctor to be evaluated. Learn about the facts and myths of dementia here. Also, find dementia services and support groups local to Illinois.
Alzheimer’s Association Helpline
Learn more about programs and support services for persons with dementia by calling the Alzheimer’s Association 24/7 Helpline at 1-800-272-3900.
Area Agencies on Aging
An Area Agency on Aging (AAA) is a public or private non-profit agency, designated by the state to address the needs and concerns of all older persons at the regional and local levels. On this site you can find your local AAA agencies.
Share Your Resource
Do you have a resource that you feel could benefit someone living with a younger-onset dementia diagnosis? Or perhaps a resource that may help someone simply understand what younger-onset dementia is? We aim to collect your resources and share them with the Lorenzo’s House audience!
Thank you for helping us grow our library of community resources!
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