Our annual, virtual event exclusively for the sons, daughters and children of YOD.
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empowering sons, daughters, children of YOD
SUMMIT is designed and led by sons, daughters, and children who have a parent navigating (or who has navigated) younger-onset dementia. It is our worldwide, youth-led event: to heal in community, build connection, learn tools and strategies and advocate for dementia justice.
SUMMIT offers a range of sessions, co-designed and co-led by our Youth Leads & Dementiacators (an 'educator'; expert in the field).
SUMMIT 2027 Registrations
growing young leaders & spreading knowledge
At SUMMIT every year, young people with lived experience co-design and co-facilitate our SUMMIT sessions: Youth Lead, with trust, insight & empathy.
Alongside, a Dementiacator (an 'educator' in the dementia space): an individual who is knowledgable in the dementia space through lived experience and / or field experience with passion for educating others.
90 Youth Leads, Dementiacators & Ambassadors from SUMMIT 2026
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healing and educating
Check out our SUMMIT schedule for 2026 below
SUMMIT Program 2026This discussion will include what we know about hereditary factors, genetic testing, and what it means for young people & their families affected by younger-onset dementia.
This session is a powerful, hands-on art experience that brings our community together! We will use creative expression to share our unique stories and reflect. As we contribute to a collective art piece, we’ll explore the connections between our individual experiences & the strength we build together.
A panel discussion amongst experts from across the globe designed to support you at every stage of the journey-offering essential financial, medical, and legal insights, practical tools for caregiving, strategies for navigating decisions, and guidance on end-of-life planning.
Wisdom This session offers a meaningful space for reflection, connection, and creative expression-whether through art, writing, or movement-to explore our unique stories and celebrate the strength in our journeys.
A supportive space to explore healthy ways of understanding, expressing, and navigating grief and loss through meaningful conversations and practical tools.
amplifying collective wisdom
youth-designed tool to dismantle stigma
EmpowermentPLUS
Our EmpowermentPLUS model is a youth-designed tool to
end dementia stigma.
This tool emerged from SUMMIT 2024!
together we heal & advocate



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