NextGen YOD Movement

NextGen is a global advocacy movement that will educate the first generation to meet dementia without  silence, shame or invisibility. 

Like-minded daughters, sons and children of a parent affected by younger-onset dementia, as well as, committed and passionate allies, will drive dementia justice; raising awareness, ending stigma, refining policy & normalizing conversations around brain change…ultimately building a more informed and empathetic world.  

What are the overriding GOALS of NextGen?


1. Attract & Unite committed people seeking dementia justice for families affected by younger-onset dementia. 


2. Identify & Develop critical topics for change and develop courses and activities to prepare us for leadership roles at conferences, screenings, podcasts, our annual SUMMIT and more. 


3. Design & Implement a strategic advocacy plan that gives agency to all members who individually and collectively work to build a YOD-informed society – our young people as our compass.

How to get involved as a NextGener?

Through an application process there are three ways to participate:

    • Son, Daughter, Child or Family member affected by younger-onset dementia 
    • Ally: our passionate allies who are committed to improving the younger-onset dementia carer journey
    • Sponsor: our partners who fund the growth and impact of NextGen, from individual to full project sponsorships, we will attract global partners. 

To join our Movement, fill out our NextGen Interest form: 

NextGen Interest Form